Steve Jones

Action for Pulmonary Fibrosis

Google ‘pulmonary fibrosis’ and be prepared to be shocked.

It is a devastating disease that few people have heard of, but for those who are diagnosed it is terrifying. PF scars the lungs making them harder and smaller and, literally, deprives a person of oxygen. It never gets better, there is no cure and life expectancy after diagnosis is three to five years. Steve Jones, Action for Pulmonary Fibrosis Chair, was slowly dying from idiopathic pulmonary fibrosis until his lung transplant in 2016. In 2017, with 5 years life expectancy (he’s on his 6th year post transplant and defying doctors again) against all odds, through Covid Steve has used his position as Chair to transform the world for people living with and affected by PF. He lives every day like it’s his last. Steve has overseen the growth of APF (founded 2013) through Covid, ensuring more people affected by PF have access to expert information and support. He has been fundamental to APF’s expansion into research to find a cure. John, a fellow transplant patient says: “Without Steve - his positivity, energy and commitment - I can honestly say I would not be here today. I owe Steve so much.”