Alex's Wish was founded in 2012 with a mission to find effective treatments/a cure for Duchenne Muscular Dystrophy, an aggressive fatal muscle wasting disease. One in every 3,500 boys born are diagnosed in the UK. It's the biggest genetic childhood killer condition and the most lethal form of Muscular Dystrophy. Without a cure, boys will only live into their twenties.
We set ourselves an ambitious goal to raise £1,000,000 by the end of 2020 and invest in the best science - early stage research, clinical trials and clinical trial capacity. We achieved that goal one year early and celebrated with our supporters at our annual ball in November 2019 and at our Supporters Thank You Lunch on the 6th March 2020.
We started from scratch no charity experience, nothing in the bank and working from Emma's kitchen table. Today we partner with Duchenne UK, a leading Duchenne charity, and many other parent-led Duchenne charities across the UK/worldwide. We have already funded 23 projects from early-stage research to clinical trials as well as four new clinical posts to run the trials, ensuring we focus efforts on treating this generation of boys.
Our next target is to raise £1,000,000 within three years.